On Infertility and the Church

Just last year a friend asked me if it was alright for her to talk about her pregnancy. My youngest was about a year and a half at the time. Presumably the pain of infertility is enough in the past that I should be able to have these conversations without holding myself back.

I appreciated the question.

Was it time? Could I do it?

Or would it, like so many conversations that happened during our years of infertility, throw me into emotional chaos?

It only took a few seconds for me to take stock and realize I was ready. This was a friend who had prayed for me, cared for me, loved me, who was now on her third pregnancy and hadn't really felt free to talk about the first two with me because we were still waiting and hoping and experiencing the pain of loss over and over and over again. And she knew it was too much.

It's funny, you know. Looking back on the years of that struggle, there are a few very stark memories that define it for me.

Sitting in a pew at church while pregnant woman after pregnant woman walked by, bellies right at my eye level, and fighting ever so hard to be happy for them, to pray for their unborn children and, honestly, fighting hard not to flee down the aisle and sob in the car.

I didn't always win that fight.

Listening to sermon after sermon wherein the person shared a similar struggle and how God eventually "blessed" him or her with that long-awaited biological child.  Because (a) they finally stopped asking or (b) they let God teach them something they were stubbornly unwilling to learn and so God answered them or (c) they prayed without doubt or (d) they prayed in tongues or (e) they chose holiness in their life and so God rewarded them. It really goes on and on. And not one time did I hear a sermon in which God didn't answer that prayer in exactly the way the person wanted. And yet I know couple after couple for whom a biological child was not "the answer."

Being told that to "be fruitful and multiply" was still God's mandate for how I should family plan. Just trust him, if children are indeed a blessing, then you will have more.

There was no language for what we were going through. There were only stories of victory. Hang in there, I know someone who waited 10 years! Oh, well, you are going to adopt? You know the second you do, you'll get pregnant. That's how God works. Stop asking. Once you don't want it, he'll give it to you.

Friends, come on.

Really?

Can we not do better for one another, here? Can we stop misrepresenting God as a capricious, malicious being who only gives kids to those who pray the right way? Are we really going to tell people there is a way to earn kids? What is that?

I realize that there is no comfortable way for us to talk about infertility. It DOESN'T make sense. In our case, the medical community called it "unexplained." There was no biological reason for it. There was nothing we could "fix." Maybe that's why all the spiritual fixes felt even more unhelpful. Even though we knew we disagreed with the theology of so many of them, we would latch onto the hope they offered. Ok, maybe I am NOT praying hard enough. OK, maybe I AM really being disobedient in some way. What can I change? What can I do so God will stop punishing me?

Maybe it's my fault. I caused it, I perpetuate it, I am guilty, somehow.

Rather than sitting with each other, lamenting the losses, the miscarriages, the unwanted periods...we struggle to find an explanation. And inadvertently heap guilt on one another when we do.

Look, I don't have any answers here. I don't know why it happens. I don't know exactly what God is up to in anyone's journey of infertility. I know the literature says that it can be as emotionally painful as a cancer diagnosis and I know that felt true. It was literally debilitating at times. And it sure as heck was isolating.

And I know the church, where babies are celebrated, longed for, baptized, dedicated and cherished can be the hardest place in the world for an infertile woman to thrive. Sometimes the way motherhood is communicated, the way pregnancy is communicated, can even threaten the very woman-ness of someone going through this. She feels less than. Like who she was created to be cannot fully be.

Can I be honest?

This is nonsense. Utter, damaging nonsense.

I was created to be a daughter of a loving God. That's it. Whether I can produce a baby or not doesn't change who I am or my status before God. Let's cut this out now. 

It's Pregnancy and Infant Loss Awareness Month.

What if we talked about that IN THE CHURCH?

What if we started to have a language for women to understand that it isn't about their spiritual effort?

What if we mourned with those who mourn in this particular area?

What if we shared stories from the pulpit that DIDN'T result in a biological child?

What if we talked about adoption not just as the "solution to abortion" in our churches but as a complex and traumatic choice and not the simplistic, unicorns and rainbows, way that we currently do?

What if we didn't talk about adoption as the "backup" plan?

What if we could truly be the church and embrace those couples who feel alienated from a culture that equates blessing with family size?

What if, like Jesus did, we could just sit with a woman in pain and offer her love?

Man, that would be a beautiful thing.

Friend, if you are going through this silent pain, please know that I'm safe. I would be happy to listen, to cry, to lament, to yell.

And I promise not to offer you any solutions. Just love.

The Silent Loss

They call it the Silent Loss. The Invisible Death. You can go through it without a single person besides yourself having any idea it's happening. And no one can possibly warn you about how hard it will be until you experience it. Possibly we think it will be an easier loss because we've bought into the lies of our culture that tell us it's "just a fetus." That dehumanize what from the instant of conception is unequivocally life, and beautiful life at that. For many people, the minute the little stick turns pink, that child is a baby, a little life on the way, with cribs to plan for and maternity clothes to buy.

Perhaps since I've been so honest on this blog about our own story of miscarriage and infertility, I find myself often aware of people who have gone or are currently going through the loss of miscarriage. Just in this last month, my heart has been broken three times alongside friends who have shared this news. And you know what people say? It happens all the time. It's common. Which unintentionally, or possibly intentionally, communicates that we should recover quickly from it. Get on with our lives. But you know what I say? There is nothing common about death. Every loss is unique, every baby has the right to be mourned. There is no such thing as "getting on with" something when you've lost a child. That loss will always be a part of your story.

I daresay the stats would support that if you are reading this you fall in one or both of two categories: someone who has experienced miscarriage for yourself or someone who knows someone who has. And let me be frank: if you don't think you know someone, you do. That's where the whole invisible thing comes in. Someone in your life has been through this. And after 4 years of processing, reading, ranting, praying, talking, listening and hoping, I've come to some conclusions about this silent loss. I share them today to stand in grief with my friends who are currently going through this. I love you, God loves you and I wish with all my heart you didn't have to go through this.

(1) You are never ready for how hard it is going to be.  There is no other way to say it. It's death, it's not expected and it hurts a ton. It doesn't matter how "early on" you were nor should you let people tell you it should hurt less if you were "only" a certain number of weeks along. It's real and painful loss.

(2) You and your spouse will likely grieve it in very different ways and wanting said spouse to grieve the same way you do will only add conflict and pain to your grief. Let him or her grieve their way and try to move towards each other as best you can even if you can't understand the other's process.

(3) Don't try to "get over it." Accept that this loss. Just like if you have children who have lived, this little one will always be a part of your family's story. Ignoring it in the vain hope that I'd eventually stop being sad didn't work for me and I doubt it works for many people.

(4) Don't try to replace that baby. Sometimes when we lose a child we rush back into the "trying" phase again under the false expectation that another pregnancy will heal that pain or fill that void. That is a unique child you lost - no other child can or will ever replace him and you are setting yourself up for even more pain and confusion if you expect a pregnancy to solve your problems.

(5) Expect the due date to be a hard day. You may have lost your baby at 5, 12 or 20 weeks. No matter how early it was, that loss is valid and that due date will feel like a sucker punch.

(6) Know that social media will be a minefield. Seriously, you can't swing a cat on facebook without hitting a pregnancy announcement or a photo album of a wrinkly, red newborn. Some days it won't affect you and you may even be able to rejoice with your friends, other days you will feel like someone is dancing on your heart and shouting "look what we have that you don't!" Try not to take it personally, shut down the computer and go for a run. Or sing 80's music at the top of your lungs. You know, whatever works. 

(7) God's sovereignty is tricky and people who try to comfort you with it maybe don't have it right. People might say "she is in a better place" or "God must be causing this to teach you something." Um, yeah, that's not helpful. None of it. Do I believe that anyone who is already in eternity is categorically in a better place - sure, God's a pretty awesome being to be around. Is that a comfort when I want my baby in my arms? Not really for me. Maybe for some people, though I can't say. Is it true that God caused this to teach me a lesson? Nope. Is it true that God caused this to teach me a lesson? Nuh-uh. Is it true that God caused this to teach me a lesson? No freakin' way! Can you tell this was a particularly hard lesson for me to learn?  My God is not vindictive or manipulative. He is love, he is good, he is life abundant.

(8) Church is hard. It just is. Most churches seem like baby factories, pastors talk about being fruitful and multiplying (can we PLEASE talk about context with that one!) or quote passages about God closing or opening wombs and everyone on the playground asks intrusive questions about how many kids you have. And nobody talks about miscarriage in public. Ever. We church people don't know what to do with it when our whole lives we were told that babies are blessings and God wants to trust tons of them to us to raise. But what do we do when we don't have them- what does that do to our understanding of blessing and God's role in fertility? Boom. Yes, that was the sound of my head exploding. There are no quick answers here. Sovereignty is tricky and since about a bajillion books have been written about how it works, many of which differ in their conclusions, I will not attempt to write the final word on it here.

(9) You are not being punished. This didn't happen because you parented a first child wrong or because you didn't learn some lesson God wanted you to learn. God is good. Satan is not. God hates death. Satan loves it. Bottom line.

(10) Life's not fair. You can't expect to only go through a miscarriage once - it could happen again or it could be followed, like us, with years of unexplained infertility. And it's fruitless and petty to keep score with other people on who has had this whole thing the hardest or easiest. If you could, I'd be mad at every woman I saw in Target who had 4 kids trailing her. It is my firm belief that Satan is having a field day when it comes to the fertility question. Miscarriage, stillbirth, infertility, abortion, SIDS. None of those are from God. Not one. But trying to ask for fairness in the world is futile. We live in a broken world and no one, NOT ONE OF US, is guaranteed justice, fairness or freedom from pain while on this earth.  That is only reserved for eternity.

(11) Remember it. Some people get tattoos. Some have memorial services. I got a necklace with our daughter's would-be birthstone and wear it almost every day.  On the 4th anniversary of the miscarriage I named her because I could no longer bear to call her an 'it.' Not everyone needs to do this the same way- but if you choose to remember, you won't try to replace her. And if you don't try to replace her, you might actually find yourself starting to heal.

I could probably go on and on. If I'm totally honest here, I wish I hadn't learned these lessons or that I had learned them through research rather than through experience. I wish we hadn't gone through it. I'm certain that God has remained present and taught me amazing things as I have clung to him but I will never be, nor do I have to be to remain a God-honoring believer, thankful that it happened.

What I am thankful for is that I didn't stay silent. Oh, I did at first as many of you know. I hid it, I ignored it, I insulted my friends by not trusting them to love me in it. But eventually, I let people into it. Some of them didn't say the right things. Most of them did. We can't expect those around us to respond perfectly all the time. But we can risk letting them (maybe one person, maybe ten) know that we will not suffer our loss silently or, perhaps more importantly, alone.

The Naming

It's been over four years since we lost our second child. That first year was full of pain and secrets and transitions. The second year was full of questions and anger and the first stirrings of healing.The third year was full of hope and waiting. This fourth year has seemed to roll all three years into one huge, emotionally chaotic experience. One constant, though, through these four years has been the namelessness of that little one. Calling he or she an "it" or a "baby" but never being able to refer to that child with a name. It's kept that baby distant from me. Nameless, far, removed. 

When I first began to share what had happened, that loss, people always asked me how far along I had been. And each time I was asked that I was reminded again that our culture, including myself, thought of the pain as less real, as that child as somehow less human, the earlier its death had occurred. So with each asking of that question and each increasingly timid response of mine, I felt that my pain should be somehow less than it was. This wasn't really a baby, it seemed. Just a positive pregnancy test. Just a blip on a screen. Nothing that should have had a hold on me.

But it did. SHE did.

I've written recently about the time I spent at a retreat center. During that time, God was very present. And though I hadn't spoken to Him about our miscarriage in a very long time, I felt the freedom to bring it up again. To bring the loss back into the light. To ask some hard questions. And all the while, I grew tired of saying "it." I began to wonder, for the first time, if it would be alright for me to name this child. This faceless little one that I never met. And the moment I asked the question, I already knew the answer. Why not? God already knew this little one, had already given her a name, knew her intimately. Why shouldn't I? And as I sat there, just listening, just being quiet, I knew two things. I knew she was a girl and I knew her name was Amara.

How do I know that? No idea. Does God regularly speak audibly to me? No. But there was just this absolute quiet and a sudden knowing. And I have never been more sure of anything in my life.

That night I got home and looked up the meaning of the name Amara. I've actually never met anyone with that name. I hadn't chosen it in the short time we had to plan for her birth. And as I looked it up, I was astounded to see that it means "eternal beauty." After all, this is the only kind of beauty that I will ever get to see of her. The beauty of getting to carry her little body for a short time and the beauty I will see in her when I one day pass on and finally meet her. Eternal. Not earthly. Not here and now. But someday. And forever.

Recently I stumbled onto an e-book titled "Naming the Child." In this book, the author, Jenny Shroedel, describes infant death as "the forbidden room." It's a place no one wants to go, an off-limits place full of painful memories, secrets, images. A place no one wants to engage or deal with its stirred-up questions.

But it's a place all too frequented by so many of us. Because we don't want to speak of it or burden others by the silent deaths, we keep them silenced. We don't name these little ones. And for some people, I recognize, the naming will only be too painful. It's not what they need. But for me? This has been a long-awaited step of healing. Naming this child, naming this daughter has once and for all helped me to unashamedly declare that she IS. She is not a positive pregnancy test, she was not just a blip on a screen, she should have and still does have a hold on me. She always should.

For three of these years I have worn a sapphire necklace just about every day, the birthstone of the month she should have been born. Sapphires, a symbol of truth, sincerity and faithfulness. And the day I named Amara, I stumbled upon the following scripture:

"For the mountains may depart and the hills be removed, 
but my steadfast love shall not depart from you, 
and my covenant of peace shall not be removed, says the Lord, who has compassion on you. 
O afflicted one, stormed tossed and not comforted, 
behold, I will set your stones in antimony and lay your foundations with sapphires."  Isaiah 54

I would never have asked for these four years. I would never have wanted to lose our daughter. I would never say those trite words that "this is for a reason," like some have said to me, but I do know one thing. Amara is a gift. And the years I've experienced after her death have been years that have changed me in different ways than maybe her birth would have. I'll never really know. I cannot. But since I cannot change the fact that I will never know her this side of heaven, I can continue to hope. I can be reminded that God's steadfast love has not departed from me during this time. I can, every time I glance down at my sapphire, be reminded of a precious baby girl who is a part of this family and is treasured.

Amara. Of Eternal Beauty. You have been named. You are no longer an "it."

You never were.

An Open Letter to My Pregnant Facebook Friends

Dear Facebook Moms-to-Be,

I'm really excited for you. I truly am. Nothing quite matches that feeling of expecting a child, of knowing that a little person is growing inside of you and preparing for that moment when he or she enters the world and irrevocably changes your family for the better.

I loved seeing your announcement, that wonderful post that let the world know that in just a few short months that little bean in your ultrasound picture will be with you and in our lives as well.  I look forward to the pictures that you'll post right after labor. (Though PLEASE don't post during labor.  Maybe I'm old fashioned but I feel like those hours of hard work and labor don't need to include wifi breaks.  They should be private and treasured between you and whoever is helping you out! Wait until you're done and then open up your laptop again.)

I'm sure I'll click on pictures of your baby as he or she grows up and maybe even the occasional video, too.  After all, I love posting pictures of my own child and it's wonderful to see kids growing up, achieving all their firsts and seeing how they change you, my friends, along the way.

But here's the deal.  There are women, lots of them, who cannot experience what you are experiencing.  They have prayed and cried and waited, many for years, and have never seen that little stick turn blue. Or maybe they've seen it turn blue one too many times and never ended up holding that little child in their arms.  Possibly they've undergone painful procedures and tests, have had to change their diets and inject drugs in public bathroom stalls and endured insane mood swings to attempt to get their bodies to cooperate with the whole pregnancy thing.  They've likely read one too many stories about women who chose an abortion rather than give that child up for adoption to women like them who have yearned for a baby for years.  Maybe, like me, they've had the opportunity to have one child and experience pregnancy only to turn around and have any future pregnancies denied them due to the hazy diagnosis of "unexplained secondary infertility."

Whatever the case, facebook can be a hard place.  I want to rejoice with those who rejoice. I really do click on your announcements and though I usually experience a concurrent surge of grief and jealousy, I am excited for this new little life that will enter yours.

What is very difficult for many of us who struggle with infertility is those many posts that complain. That complain of pregnancy weight gain. That speak of fatigue because of a little fetus doing flips during the night.  That daily update us on how hard pregnancy is and how they hope they won't be pregnant again any time soon.    

Because many of us would give anything to have pregnancy weight gain. Or to be kept up at night from a kicking baby.  To have to even think about the idea of fearing another pregnancy too soon.

Do I think you should never complain? Certainly not.  Did I complain when my ankles were swollen and during that awkward period when I grew from "flat belly" to "chubby" but before I hit "baby bump"? Sure. But I didn't complain about it to hundreds of people. Those were the things I talked about with my husband or my mom or a close friend who I knew didn't struggle with infertility at the time.  The immediate world didn't need to know about it and I had already known several friends who had had trouble getting pregnant and had learned at least a little about the arts of discretion and sensitivity in this area.

So, please hear this plea from a gracious and loving standpoint and from someone who has made her own insensitive mistakes along the way.  We are excited for you and will come to (and sometimes host!) your baby showers.  We are usually grateful to hear about your pregnancy via email or phone before you post on facebook if we know you well enough to deserve such a heads up- it helps us prepare for the big announcement that will inevitably incur hundreds of likes and comments, as well it should.  We do want to know. We do want to rejoice.

But know, too, that it often hurts. Sometimes just a little bit deep down or sometimes it hits us on a tough day, when our miscarriages or stillbirths or our unfulfilled longings for pregnancy or our broken adoptions are just right at the surface.  And we don't want to rob you of your joy - that wouldn't be fair or loving of us. But I would love it if when you sought to share your complaints you sometimes, just sometimes, took pause to think of doing it in a way that reflects that you have mourned with those of us who've mourned and that you know we're out there.  And that maybe you value us more than you value a few "likes" on a status that is maybe not so necessary to post.

We live in a world where we're told to do anything we please and the effect on others be damned.  I hope that, at least in my own little facebook world, we can live as though that's not true. Aware of how we affect the people in our lives, choosing to put others ahead of ourselves, making choices that honor God and love people well, rather than just choosing the action that gets the most response from people.  My hope is that those of you who have never been affected by infertility, who haven't even know someone who struggles with it, will know just a little more of how you can support those of us who have had lives enmeshed with this struggle.  There are probably more of us in your life than you are actually aware. 

And my hope, too, is that you WILL keep posting those adorable pics of your babies.  On my good days, they give me hope, they remind me of what's to come and they allow me to rejoice with you.  And that rejoicing always reverberates through my own soul, helping me to wait more patiently and love more exuberantly while I do. 

Thanks for listening,

Carolyn 

When, If and Done

Every time I walk in my closet, I see it. A clear box. Full of maternity clothes.  And for the first few years after Josh was born I would occasionally wonder, in that sleep-deprived and panicky new motherhood way, when I'd get to wear them again ("but please, God, not too soon!).  When I got pregnant in 2008, I pulled them out, gave them a good wash and hung them up, ready for the moment when I'd move from squeezing into normal clothes and back into their comfort, their sweet promise of new life to come.  

After the loss of that baby, I quietly packed them up again and put them away, certain it was only a matter of time before I'd pull them out. And pull them out I did, to loan them to pregnant friends. ALL THE TIME.  Don't get me wrong, I was happy to do this. Happy to help out friends who needed them. But they were mine. For my babies.  And every time I gave them away I always made it clear I needed them back when they were done.  Because my pregnancy was next. It was "when".

At some point thinking about that box moved from "when" to "if".  I kept them on hand for if I ever needed them.  It felt like the right spiritually mature word to use at the time. After all, didn't I go through counseling to deal with the miscarriage, even if it was a year and a half late? Didn't I talk through my infertility and get to a point where I was ok with not getting pregnant again, excited about the adoption route?  I could leave that word "when" behind, no problem.  But, so as to not rule out God's possibility of miracles, I kept that box. I held strong to the "if." Who was I to decide that God was beyond performing a miracle? And if He wasn't beyond that, I wasn't through waiting.

At some point though, "if" has become a poisonous word. It has given me permission to be selfish, to hold on to these clothes that could benefit someone who really needs them.  To always, every month, even though I promise myself I won't anymore, get my hopes up.   To be consumed by the possibility of a miracle, even though we are already waiting on a beautiful miracle to come through another avenue.  To buy into the ugly lie that if I would just get pregnant, it would be a better end to our story than adoption on its own.

So, it's time.  This morning, I marched into my closet.  For the last three and a half years of my life, I have looked at this box.  I have picked out my clothes for the day, glanced at the "if" box and went on my way.  No more. Today, the box becomes the "done" box.  There is now an empty corner in our closet.  Whether we get pregnant is a non-issue at this point.  Moving the box from "if" to "done" is my ebenezer, a stop on my journey to say God is God and enough is enough. I plant it in the "done" to say that I trust Him. Whatever happens. I don't trust in a box of clothes. I trust in a God who loves me, who is for my good, who has bigger and better things for me and my life than an "if" box in my corner.