Showing posts with label Parenting. Show all posts
Showing posts with label Parenting. Show all posts

Saturday, September 4, 2021

On Raising Special Needs Kids

 One of the things I have learned most acutely through the last seven years is the importance, really, the absolute necessity, of having friends who are also raising kids with special challenges. Doing this alone is empirically impossible- the feelings of loneliness, confusion...the inability to relate to people with neurotypical kids. It's a lot. Consequently, I have been so grateful to have a close friend since we moved to Virginia who GETS it. Who has lived it. Whose son is a little further along than mine at this point and can empathize and insert hope into situations. Tonight, she sent me a text as we have been in the trenches helping our son recover from Covid reminding me that it's normal to be exhausted, that our lived experience is so different from so many others, that I need to hang on but it's ok to have feelings of being alone, overwhelmed and, yes, even hopeless sometimes. 

I have her permission to share her words. My dear friend, Kim Rodgers, gives us a small, but very honest glimpse into the world of parenting kids who are outside the mold. I will warn you - these are really raw words. There is no happy, contented words to conclude. Just a glimpse into the challenge. I encourage you, especially if you are NOT a parent to a special needs kid, to read this and seek to empathize. We are a lonely bunch.  

"We are in the shadows of life and the world. Just trying to make it through. 

We are trying not to compare our now to our friends, family's or neighbor's now. Trying not to be jealous of the routine or lack of. Or the trips they take. Living life on a whim verses planned and rigid- because an unexpected change or shift ruins and hour, a day or even a week. The errands that can be run spontaneously. The "normalcy" of school days without IEPs, 504s and behavior issues.

The friends that a neurotypical family takes for granted the level of normalcy that brings to a child's life- friends that come to play and play for hours. Going to a friends house and playing for house. Snacks that don't have to be planned and monitored. Sleepovers, always having a friend in class, at lunch, in activities. 

As opposed to the special needs family that prays every day for someone to just be nice and accept our child for that one day. That they don't get picked on. That they have a nice lunch- maybe even peers that talk to them or include them in whatever nonsense is happening during an elementary, middoe or high school lunch time. That they have ONE friend to play with at recess or that they get picked for a team. That they get an invite to the birthday party, the holiday party. 

Our worlds are so different they rarely merge. And the hardest part is as a special needs parent we are so used to trying to hide in the shadows or stay in the shadows because the spotlights that get put on us are never the ones of the starts but the ones of shame, judgment and disgust. 

So we bury ourselves. Deep. To protect. To survive. Because we aren't in the light as we try to hide. We are all of the tired. All of the hurt. All of the scared. All of the embarrassed. All of the pain. And all of the worry." 

Thanks, Kim, for your honesty. And for always, always reminding me we are not alone. 

Thursday, January 9, 2020

How You Do It

Time wound down towards the end of my therapy session. I hadn't had to cancel this one for an emergency, which was rare and lovely. As I began to pack up my things, he looked at me, took a deep breath and said "I'm going to refund your money for this session. I just can't charge you for it. I don't know how you do it."

I don't know how you do it.

Those seven words.

How often have I heard them over the years? Daily? Weekly? Hourly? I guess it has depended upon the season, the level of relentless impossible parenting we are experiencing.

The past two months have been the hourly type of stretch. I have heard those words from doctors, therapists, friends, parents.

I have said them to myself, then taken a deep breath and kept going. Because here is the honest truth.

The quick answer is that you don't. You don't really. There's no choice to do it or not. You just wake up and, to be honest and raw, get the shit kicked out of you for about 12 hours straight, try to reset as best as possible in the evening while worrying about all the things you couldn't accomplish that day, sleep too briefly and start over again.

The only other options are committing a felony or leaving. I'm not exaggerating. That's what it's like.

Normally, when people say those seven words, I just shrug and say "you would do it if it were your life." Which is the trut- most people would. While there are things we can pick and choose, decisions we can make to steer our life in a certain direction, there is also plenty that is out of our control. Some people want to get married and never do. Some people want a child and can't conceive. Some people envision family life the way it's portrayed in the movies and end up with a chronically ill child. Some people have dreams for a career and life and get stuck in a cycle of poverty because of medical bills or job situations or natural disasters.

The illusion of our choices being completely our own - well, it's just that. An illusion. Our only real choice in life is how we react to what is happening and what choice we make in the aftermath. That is literally all I have control over. And, sometimes, I don't even have that. Sometimes I am just too tired, too done, too overwhelmed to choose a healthy reaction. We all have those moments.

I don't write this to ask for sympathy or pity. The thing is that we all have something, at some time or another, that someone else cannot imagine handling. Loss, grief, addiction, illness, divorce...we could all list a time when we knew it was too much for any one person to handle, but in that moment, we did. A friend of mine recently shared the story of the stillbirth of her son and I could not imagine having gone through what she went through and having come through the other side. She did, though. Unscathed? Of course not. But she did it.

I write this because we all "do it." We look at others and think they have it all and then find out they have "done it." The bible says that in this world we will have trouble but that we should "take heart" because Jesus has overcome the world. At its core foundation, the "doing it" is an act of audacious hope. That life might get better, that we are not alone in the hardest moments. That Jesus knows what it feels like and hasn't left us out to dry or told us we have to dry our tears or suck it up.

Do I know if anything will change?

Nope.

Do I go to bed dreading the morning a lot of the time? Wishing that I could sleep for 24 hours and see if I might feel better?

Of course.

But we wake up. We do it. We work. We play. We remind ourselves of the truth. We love, even in the most unbelievably exhausting circumstances.

And we choose how to react to it all, when we can. We can choose honesty and rawness and even find gratitude in the days that seem to hold nothing for which to be thankful. And in that choosing, in the doing it, in the perspective, even when we cannot see what's happening, God is at work. Molding our story to encourage someone else. Slowly healing the places in ourselves and our families that we cannot or will not see.

When I head back to my next therapy session in a week, I'm going to hand him this blog and tell him to keep his money. The refund only made me wonder how I possibly COULD keep doing it. And the reality is that I can't. Not alone, not really. That's why I am in therapy. That's why I have friends and family I ask for help. That's why I wake up in the morning before I have to parent, sip my coffee and find perspective for the day in prayer and writing and scripture and song.

That's how you do it, friends. One minute, one step, one choice at a time of how to respond to life, even in its most vicious and relentless moments.

We were never promised ease.

We were just promised we aren't alone in the doing.

Thursday, September 5, 2019

Pressure

There's something I need to confess. Two things really.

First, this has been weighing heavily on me for awhile but it's time to publicly admit that I bought a running fanny pack and it's everything I thought it could be and more. I can only assume that at some point I will throw full caution to the wind and embrace it for all personal carrying needs. And that my 12 year-old will officially hide when he sees me in public.

Second, this kindergarten thing has got me feeling crazy, but not in the way I think many other mamas are feeling. I don't have any sappy or weepy needs to curl into a ball. I didn't stare out the window all morning or look at baby pictures or stalk the school playground to check in on him. 

I went on a long, exhausting, exhilarating run, the kind of run that clears your head and brings things into perfect clarity. 

About 10 minutes into it, I realized that I have been a perfect mess for the last week and I realized why: these past two years since my son started to have really significant trouble in school, since we had to pull him before he got expelled from preschool, the specialists, the therapists, the prayers, the tears, the rage, all this has led up to the moment of truth. 

Can he and will he be able to handle...scratch that, THRIVE, in Kindergarten? 

No parent wants his or her child to just get by. To be tolerated and then talked about behind closed doors of teacher meetings. No parent wants that child to be labeled or to have low expectations put on him. I have seen the people who expect the best from him and I have seen those who have diagnosed him on their own (without credentials to do so) and basically made us feel like failures as parents. I've met doctors who believe me and others who question my honesty. Those who want to medicate and those who want to heal- and yes, I've learned there is a HUGE difference. 

There is only so much that I can control about what happens to him. We had spent weeks leading up to this day: we had prepped him for goodbye, prepped him for getting on the bus, tried to get him to go to an event for rising kindergarteners to practice getting on the bus to no avail and he had finally, excitedly, woke up ready to do it. He was out waiting for it 20 minutes before it should have come wearing his adorable little kindergarten label and a huge smile.

It never came. 

When that bus didn't show up and my happy, excited, passionate child started to let disappointment and nerves creep in, I got angry. We had to change course. After ALL the prep and conversations, the bus wouldn't be taking him in after all. And for kids like my son, that one thing can literally be THE thing that undoes the day. That tanks the mood. That starts the tears or anxiety or defiance.  

My husband explained the change in situation to my sad boy and he willingly, miraculously got in the car. I watched them drive off to school with my heart in my throat. Not because "my little boy was heading off to kindergarten and wasn't he just a baby yesterday" but because of all the what-ifs. All the ways I still don't know if he is ready, if his teacher will be able to handle his challenges and get the best out of him. If he will rise to it the way I know he can. 

I watched the phone, waiting for it to ring. I paced. I snacked. I ran until I couldn't breathe. 

In truth, I put a ton of pressure on myself for his success today. 

Have I done everything I know to do? I think so. 
Is it probably everything that can be done? Nope.
Have I failed him along the way? Absolutely. 
Have I likely been unwittingly rude or snappy with a medical professional? You bet your patootie. 
Has the system been frustrating to navigate? Of course it has.
Do I have any control over how this day goes? Not at all.

And there's the rub. I have done my part. 

He made it to day one. We all did, with scars to show. 

And right now, as I know he is heading into his last hour and a half at school, I can't help but wonder how long this feeling will last. When will I be able to breathe? To rejoice in having at least made it to day one? Will there be a moment the scars start to fade a little? Or will there be a fresh battle to fight yet again? 

I can't answer these questions and I also can't spend all day asking them. Putting that much pressure on oneself is utterly exhausting, but I often don't know how to do life any differently. I really am trying, despite what it looks like. 

I am hoping he will walk off that bus this afternoon with his gorgeous grin and chatter away about all the good that happened today. 

And I'm hoping by the time he does, I'm ready to greet him with a smile of joy and hope and help him get ready for day two.  

Wednesday, May 8, 2019

Moment of Grace

I was about twenty feet behind them, a string of boys on their bikes, following each other down the trail, my husband in the lead as I brought up the rear running as fast as my body would allow. Twelve, five and three...peddling away, smiles on their faces. No more training wheels. Moving faster than I could possibly keep up. 

The sun was dappling through the trees in that peaceful way it does in the hours before sunset. Irises in bloom, summer perennials peeking up, starting to bud, knockout roses dazzling in deep pink.

Over it all, a light breeze, a calm.

Something I could feel that went deeper than just the gorgeous weather and the moment in which no one in my house was arguing or struggling or crying or needing.

A moment of grace.

It's that feeling when the world comes deeply, but peacefully and hopefully and joyfully, into focus.

It doesn't happen often, but when it does, it takes my breath away. It's as if God is shouting "wait, listen, look, remember this moment."

Remember it, because not all moments can be like this. Remember it, because so many moments are simply the ordinary. The mundane. Not necessarily ugly or lacking in beauty, but they pass us by because of that very ordinariness. They just ARE. Cooking dinner, watching that soccer game, dropping another kid at school, waving to the neighbors, mowing the lawn, riding our bikes together.

We just go through most of our days and it's fine.

But every once in awhile, we get that gift. That special warmth in a moment, that strange but clear urging to stop and drink in what's around us and be grateful. Those moments don't always come when something is going well and they don't necessarily stay away when things are challenging.

But, oh how I love them.

I am a doer. Not someone who easily stops and ponders. Not someone who spends hours gazing or dreaming. I appreciate people who do that well. But I am not one of them. Even when I try to sit in my backyard and admire the garden, I inevitably stand up and start weeding, because, well, it needs to be done. And the doing is part of the joy for me.

But I feel like for those of us like me, we need these moments to stop us dead in our tracks. To remind us that there can be purpose to slowing down. Reason in stopping. Joy in simply being.

And in that moment, even though I was sprinting and breathing hard and looking at the back end of my string of boys who were hurtling with full abandon down a bike trail, I felt like I was still. 

My soul stopped it's churning, for about 20 seconds.

And I just drank in the deep beauty and privilege of a healthy family and a beautiful neighborhood and a generous husband and a glorious spring and a blooming garden and meals on the table and a newly accomplished goal.

And oh, friends, I am so grateful. I never expect those moments and they come so infrequently.

I am amazed at their staying power, at the ability God has to use them to shore up and encourage and remind us of the possibilities and joys we can wake up to every single day, no matter what challenges lie ahead.

God, in all his grace and wisdom, knew I needed that. And I am so glad He did.

Friday, February 15, 2019

The Truth About Miracles

There is a certain absence these days.

It's one of those things that you don't notice at first.

It's something that was so very present for so very long, that you can't actually imagine it not being a part of who you are.

It's this feeling...the feeling that used to take over my body as I was driving to preschool pickup. It was a cross between dread and hopefulness and stress and utter exhaustion.

If we had even made it all the way to pickup, I knew it couldn't have been a truly awful day, because those were the days I got a phone call. A request for early pickup. A warning.

But it could still have been a day that required a report.

With my first son, I didn't really know there was such a thing as a bad report from school. I think there was one time ever in his whole preschool experience where his teacher mentioned he might have done something that wasn't in perfect keeping with the rules.

But he is a firstborn, perfectionistic, rule-follower who has always been harder on himself than we could ever be. We had no idea how rare that is.

But those who get the daily reports know - they can have an affect on everything.

And when we hit February last year and hit a new low of having to make the decision to pull one of our sons from school to try to avoid an expulsion and to try to get him functionally back on track, it was at the end of months of tough reports. And phone calls. And early pickups. Of tightening chests and dread and holding my breath when I would walk in and try to glance unconcernedly at the teacher's face to try to ascertain what she was about to tell me so I could brace myself and keep the tears from falling.

BUT.

After four months home, after behavioral therapy and OT and a therapist who helped him acclimate to a camp by showing up every morning for his toughest time of day, we started to see change.

And then came a successful swim season. Full of smiles and races and newly earned independence and pride. Of ribbons on his wall and following around teenage heroes. Of joy.

But that was the summer. Anyone can have a good summer.

The school year started and I held my breath.

I didn't even know I was doing it.

Each day I would  drive to pick him up. And my heart would start to pound. My stomach would clench.

What kind of day did he have? Was school going to continue to be an option? Would we be home, again, doing hours of therapy a week and panicking about what options might be open to him for kindergarten?

I think I've mentioned before the constant ticker tape that happens in the head of someone parenting a child with special challenges: Have I done enough? Is this the best med? Do we need a new kind of therapy? Is this teacher going to "get" him and stand by him? What about OT? Or CBT? Or ABA? Or diet changes? The list goes on. It's always there, scrolling through in a way that has never been true for my thoughts towards my other two kids.

And it's utterly exhausting.

But today.

Today I was driving to pick him up. I had just finished a test for my class and NAILED IT and I was feeling good. And as I approached the school, it hit me. My body felt calm. Normal. Like I was just another mom heading to pick up a fully functioning child. I didn't assume the day had been hard. I didn't wonder all morning if the phone was going to ring. I took my test, threw in a load of laundry, packed up his lunch and hopped in the car.

And when I walked in, he looked up and smiled and ran and gave me a hug. And his teacher, a substitute he hadn't planned on, came over and told me he had had a wonderful day.

Guys.

That was his fifth good report this week.

Five out of five.

To some people, that's normal life.

To us, to him, that's a miracle. And it's a miracle that we have worked hard for.

You see, that's the truth about miracles. They take time and investment. They take hope and joy and failure. They take giving up and trying again. They take prayers and tears and hours upon hours of research and risk-taking. They take more than just a mom or a dad caring, they take friends and neighbors and church and teachers and swim coaches and family.

They take believing that someone has been made to be in the image of God and claiming it to be truth against all odds, against all evidence, against all experience and then gut-wrenchingly loving that truth into being.

And you know what the coolest thing is about this?

It's not just that I can be a full time student. It's not just that our house is a little calmer (and let's be honest, it's never going to be CALM, and that's ok). It's not just that my mental health is improving or that his brothers are seeing good in him or that we are all smiling more.

It's that he is proud of himself. He is happy. He is making choices that show us we can trust him and he LOVES that feeling. He is writing his name and making people drawings and notes. He is apologizing for tough days and asking God to help him grow.

Have we arrived at some perfect place that will always be good? Doubtful. Kids change. People change. There will be new challenges. He starts kindergarten this fall - the chances of that being a perfectly smooth transition are slim. But the fact that he can start kindergarten is huge. And don't even get me started on what I KNOW will be true when puberty hits for him.

But, friends, today I rejoice. I am ever so grateful for all who have come beside us as we have charted such unknown and challenging waters.

And I know some of you reading this are deep in the hard days. The days we had last winter and spring. Of hours of meltdowns and tantrums or unknowns with medical issues. Of despair and exhaustion and hopelessness.

I DO know what that feels like. Please reach out. Even to vent. Truly. I can't solve it. But I can walk it beside you.

I know our life won't stay this way forever...but I also know it feels good to be grateful and hopeful TODAY.

To rejoice in the sweet miracles we are seeing right now. 



Friday, August 31, 2018

Cue the Balloons

I don't know if it's one person's job or whether it's some kind of magical, automated thing, but you know that moment after a huge victory? When people are cheering and balloons drop from the sky as if from heaven and everyone is smiling and laughing and existing in a sea of delighted chaos?

How fun would it be to be the person who makes that happen?

Who waits for the cue and releases celebration into the world.

Today was my middle son's last day of camp. It started 3 days into summer and ended 3 days before the new school year.

Camp, my friends, was a risk. Last year came with a lot of curveballs. A lot of failures. New diagnoses. New therapists. New medicines and supplements. LOTS of new grey hairs. And heading into the summer, my son hadn't had a lot of successes to tuck into his belt. It had been a very hard spring.

His therapist, however, had insisted he was ready for camp. That he could DO this. And not just do or survive it, but love it.

And friends?

Today, I am seizing that job that sounds oh-so-fun and releasing a storm of metaphorical balloons into our lives.

Today, he celebrated the last day of camp with a party. He brought in his own safe cake and special chips and lime juice so he could partake of the kona ice truck fun. He smiled. He laughed. He said goodbye at the door to his dad without screaming or panicking.

And when I picked him up three hours later, he ran into my arms and told me all about the party. He hugged his teacher goodbye and thanked her. And she told me he had been a delight. A DELIGHT. In fact, we had not one phone call home the whole summer. Not only did he survive, he thrived.

I handed him a little gift to celebrate - a pack of water balloons - and we talked the whole way home about how much fun he had had. About the friends he had made. And the beautiful women who had taught him and laughed with him and sang and danced with him. Who had helped him have success after success.

And later on, he filled every one of those balloons and had his own little party.




And it wasn't just camp. As a sweet little four year old, he joined the swim team again this season and worked up to racing. He earned ribbons. His amazing coaches pushed him and loved on him. He had the large majority of the team and not a few parents waiting at the end of the lane in his very first 25 meter freestyle race cheering their heads off to make sure he made it. He felt like he was a part of something bigger and it made him so very happy. We even made him a swim team corkboard just like his big brother and he is so very proud of it and can't wait to fill it with more next season. He loves for me to read him his little awards that his coaches wrote for him and we laugh together about how true they are.



Cue the balloons.

We fight hard for victories around here. They don't always come often and they don't ever come easy. But my beautiful boy who had one of the hardest years of his life had his best summer yet.

I am so stinking proud of him.

He has worked his little patootie off with his therapists. And he is ready and excited for school next week. Turns out his amazing teacher this summer will be his teacher this fall so his transition (and MAN are transitions rough for him) is almost nonexistent this Tuesday. Look at God, friends.

We don't know how this fall will go. We have a lot of hope that his successes will continue. We know there will be good days and really hard ones.

But today, as his mama, I get to be the one who releases the celebration. And what a joy it is!

Friday, June 8, 2018

The Full Time Job

At some point this spring, I remember a moment when my husband looked me dead in the eye and told me "you have a full time job right now, you know that?"

He wasn't referring to motherhood.

He was referring to advocacy.

To the hours upon hours of research and phone calls and office visits and emails and texts and thoughts and strategies and desperate prayers that go into trying to find answers for a special needs child.

And as my son sleeps upstairs right now, I have spent the entirety of his naptime, yet again, on the phone fighting with doctors. Cursing insurance companies and how little they give a rip about kids like mine. Trying not to lose hope that someone, anyone might be able to actually help us.

I am just trying to get him from one day to the next knowing that there is no hotline to call when your child is destroying his room. When he's been screaming for five hours straight. Again. When your husband can't even go to work because you have more than one child and your other kids need to be parented while the other child needs one-on-one parenting every waking hour. And the other kids need not just to be supervised but reassured of your love, that this will get better somehow. To be given quiet and peace and fun opportunities that the other child simple cannot handle.

Friends, the life of a special needs parent is completely exhausting. We can't just "call a babysitter" and take a break. Self care? Really? The next person who tells me to take care of myself needs to offer to figure out a way to watch my son so I can actually do it. So my husband can actually do it. Right now the only way we can is after he's in bed at night. And by 8 pm, WE HAVE NOTHING LEFT TO CARE FOR. Really, it's just bedtime. But oh wait...there is the house to clean and the laundry to do and the bills to pay because nothing else can get done during the day.

Friends, I don't write this to ask for sympathy or advice or answers. I am literally turning over every stone I can imagine to get answers and help and I have fellow warrior mamas cheering me on. Our mental health system is deeply broken. Our insurance system is deeply broken. I honestly don't know if we'll ever find the right answers but I also can't stop fighting.

I am writing this because there is probably a parent in your life who is drowning. Who spends all day, every day searching, praying, pleading for answers and help and ending the day exhausted and alone again. And, most likely, consumed by guilt for what they can't give their other children.

Can you help? Can you drop off a meal for them? Can you take the other kids somewhere fun? Or figure out a way to watch their struggling child, even if it means it might be incredibly unpleasant and risky for you?

I had literally no idea how hard parenting could be until I had a child who didn't fit the "norms." I had no idea how all-consuming it could be, the strain it could put on a marriage, the ways it could reduce you to hopeless despair. I wish I had done more for my friends who were IN IT before I was but I just didn't know what or how to do it and I didn't fully understand how exhausted they were.

Friends, will you take a risk this week and ask a mom who is crying in her car what you can do to help? Or just surprise that dad who is totally overwhelmed with his favorite treat to eat once those kids are finally in bed?

This is a deeply lonely struggle, and every little reminder that someone sees, cares and isn't judging us is an extra heartbeat for our day.

Monday, May 7, 2018

Sanity Savers #1: The Visual Timer

Two days ago I posted about why we stick to routine around here and that we have several sanity savers that help us stick to that routine.

Today: The Visual Timer

Transitions can make it look like my child is about to singlehandedly bring on the apocalypse. We learned this at a very young age - we learned it trying to leave public places, trying to come inside, and finishing, well, anything really. We also learned that developmentally, kids can't really understand the passage of time. When he was just two years old a therapist put us onto this visual timer. It's old school, you just wind it up to the amount of time you want to pass and kids can watch the red area shrink in size until it's gone and the clock beeps. It's AMAZING for helping him wait for something, for letting him know when we are going to change activities or move upstairs for bedtime. It also helps us be consistent as parents in following through. Rather than saying "five more minutes" roughly 20 times and escalating into a frustrated rage over why our kids don't understand us, we set it and stick to it.

Which is good for everyone, really.

Recently, bedtimes have gotten really hard again. We started using this timer to prevent the endless stalling and "one mores" that can leave a parent completely frazzled at a time of day when we often don't have much physical or emotional energy left. We set the timer and do all the things we love - read books, pray, sing, snuggle...but when that timer goes off, that's it. Bedtime is done. Kiss, hug and out the door. It hasn't solved everything, but it helps him know there is a limit and an end to that time together. (He is a MASTER staller. I promise we aren't cruel. But bedtime HAS to have an end or it gets ugly.)

Incidentally, if you need a laugh about putting little kids to bed, here's Jim Gaffigan. You're welcome.

The timer here is the one we have. It's lasted 3 years in a house where we play rough. It's called the Time Timer and I can't recommend it highly enough.

Stay tuned over the next week for more Sanity Savers.
The Time Timer 




Saturday, May 5, 2018

Routine for Life: Intro to Sanity Savers

I know there are people in my life who find me too rigid, too controlled in how we do things around here. The never-mess-with-the-schedule, the strict bedtimes, the timers, the visual calendars, the social stories, the rigid diets.

And sometimes I believe them. That I'm too serious about all this or maybe if I just went with the flow, things would be fine.

They wouldn't, though. I know that.

And true confession right now: I love all the lists. The schedules. The clarity and boundaries in our day. I have always loved routine and order. Laminators and bins. Spreadsheets. Yes, I get tired sometimes and wish we COULD just stay in our jammies all day on a Saturday and just lay around and see what happens. But I know what would happen. We'd all pay for it dearly with a dysregulated, unhappy child.

It's just not worth it.

As we delve deeper into the diagnoses and the plans for how to best help our middle child thrive in a world that will soon see him as a threat, I am beginning to see that the significant quirks in my own crazy personality - the determination and stubbornness, the organization, the driving forces of passion and energy- are uniquely suited to what we are faced with. And while I continue to be my own worst critic, I have been working hard to see the good in myself. The ways that God has created me to be this mom to this child in this place and time.

This is pretty big for me, friends. I almost always only see the things I am doing wrong.

Right now, friends, our routine is life. And I am REALLY good at routine. At self-control. At doing what I'll say I do and following through with what my kids need.

And I know that I am not alone out there in fighting hard for my boy. In staying up late reading articles. In devouring books and talking to therapists and browsing the fun and function website and coming up with ALL THE PLANS.

Sometimes it's nice to come across a place where someone has already made some discoveries that might work for us, too, rather than starting from scratch.

So, while I'm no expert, we've been working hard for three years and if you have a child who might need a little extra help in life, I know sometimes you don't know about something until someone mentions it. And I firmly believe that the things we learn in life - the practical, the spiritual, the emotional, the physical - well, we're meant not to keep it to ourselves.

In that spirit, over the coming week, I thought I'd share our most favorite of sensory and routine supports in the hope that someone out there might need to know about it to support his or her little one in even the teensiest improved way.

Each day, I'll share one thing we do that I consider a Sanity Saver. And I will give credit where credit is do in how we found it.

And if it helps even one family, I'll consider it a win. Hope you enjoy!

Monday, April 23, 2018

Five

The first time I heard the term "spirited" to describe my son was at his 1 year-old check-up. The pediatrician looked me in the eye and said "Listen...this is a good thing. Some day he will be a leader, he will do amazing things. But the toddler years? They are going to be impossible."

SHE. WASN'T. LYING.

If you know anything about our story, you know we have been through some ups and downs over the past number of years. That we have been on this endless search for answers to how to best love and help our child who lives life bigger than most people around him can handle. Who feels hard and expresses it. Who is loud and chaotic and huge and never, ever for one minute of being awake stops moving or talking or emoting. Who has a list of food issues that prevents us from really ever going anywhere social. Who needs a certain intense amount of tactile and auditory input to function well but if he gets too much flies over the edge on a dime. It's been exhausting to learn and fail and learn and fail and learn and fail again.

But one other thing she said to us and that has been repeated by a number of professionals over the years is that things might change at the age of five. That maybe some of the allergies and sensitivities will lessen or go away. That some of the chaotic struggle that defines a large portion of our interactions will become milder. That we will have, in a sense, come through. That things will be on the upswing. Not easy or solved, but manageable. (Until the teen years, of course. No one ever promises you anything positive about the teen years.)

And so for 3 and a half years I have had that number in my head. FIVE. We can make it to five. Even on those worst of days...when there have been hours of meltdowns and tantrums, when we have had to pull him from school and church is impossible and our other kids are being affected and we are feeling like failures...and we wonder if the next public meltdown will result in some well-meaning person calling CPS on us...FIVE.

We can get there.

And then over a period of a few days, we get some new diagnoses.

And suddenly, five doesn't mean anything. In fact, there is no new number. There is just reality.

The reality that this will likely always be hard. There might always be therapy. People will suggest meds and judge you for doing them while others judge you for not doing them. IEPs and 504s will now be a part of your life. School will not come easy. And the fighting and learning you have been doing for almost 4 years will continue. Possibly right up until he moves out as an adult. And, because you are a parent, even at that point, you will worry. How will these things affect college? Or his career? Or his relationships? (And today I cannot even get into the side of this that is further complicated by his beautiful black skin and how he will never be given second chances at anything in a world that will start to, any day now, fear him. That's a WHOLE other blog post that my heart can't do today.)

When "spirit" turns to something more and you have been holding on to the promise and hope of relief, it feels like a sucker punch, friends.

Many of my blogs end with some hopeful plan I have devised. Some way I have realized or seen God in the midst of things. But right now, friends? Right now, I really don't have much more to say. We got the diagnoses and then family visited and then my husband traveled and this is the first moment, almost two weeks later, that I have even had to wonder what I am thinking or feeling. To ask what's next. To figure out from where the fight is going to come when I feel so worn down.

As he melted down this morning and I slumped against a wall in exhaustion before 8 am had even hit, I remembered a bracelet that my dear friend gave to me a few months back. It says "We can do hard things." I ran to my room and put it on and read the words and shot her a quick text with those words and asked her to pray. I repeated "I can do all things through Christ who strengthens me" over and over and over until I believed it.

And I realized that I had to sit down and write today - to say the words out loud that I can do this, even though I don't know how and don't have a plan. I had to let go of "FIVE" and mourn its loss, even though there isn't anything with which to replace it.

I suspect in the coming days, God will point me to something. He will use a friend to speak life. I might permanently glue that bracelet to my arm, for goodness' sake.

But today, I come in honesty and say that I am sad and tired and hurting. I want so much for my son to have a good life, a life that is full of love and laughter and joy and hope.

And I don't, at least today, how how to give it to him.

Wednesday, January 17, 2018

That Deeper Story

You don't always know it when you look at them.

They smile. They pick their kids up and cover them in hugs and kisses. They read them books before bed and help them build towers and tell them to dream dreams.

Most likely, they are exhausted.

If not from today, from yesterday or last week or from years and years and years.

From the 20th phone call this week with a teacher or a therapist or a doctor or someone from the insurance company.

From the long lists posted on their pin boards or kitchen cabinets or fridge. The lists of forbidden foods, of rigid schedules, of sensory diets and supplements. The food logs, the oils, the salts, the reminders to pull out the theri-putty or weighted blankets and to never, ever forget to go over tomorrow's schedule before bed.

From "divide and conquer" parenting that protects siblings from the chaos but can wreak havoc on a marriage.

They might look unflappable or they might have eyes welling up in tears.

And you might not know why. You might look at their children and not know there is anything different.

Or you might look and judge- why is that child screaming, don't his parents know how to discipline? Can't she act her age - spoiled brat. You don't always see the child, you don't always remember to believe there could be a deeper story. Everyone has one, though.

Don't you?

But what if you met that child's eyes and smiled. What if you squeezed that mama's hand or offered real words of encouragement to that exhausted dad?

No, not the empty kind. Not "you are a good mom" or "hey, it gets better."

Sometimes being called a good mom comes up empty. Who decides that definition, anyway? And to be honest? Who really knows if something will get better, easier, less intense?

No, say something real, for goodness sake.

"That seems so hard. I would love to help. What do you need right now?"

"Hey, I'm bringing dinner tomorrow night. What's that allergy list again?"

"It's ok to feel like this is impossible. I love you and you're not alone."

They might not have much energy to be a great friend right now or to even return phone calls. (In fact, sometimes the sound of those phone calls makes them cringe. Is the school calling? What now?)

They might be just hanging on by the skin of their teeth, fighting each day to give their kids the best of what they have left.

But fight they will. They are warriors. They see the deeper stories of their children and they won't give up. 

And their kids? Their kids are amazing.

They might not always look or act like yours do. But they are beautiful. Passionate. There are things that move them, that light them up. Sometimes their smile can totally change a room. Sometimes their screams can stop you in your tracks. But they are precious. Loved. Worth fighting for.

Next time you see one of them, take pause before you judge. Before you dismiss or assume. Before you cast words of shame upon them or their parents.

There's a story, there. And it's worth sticking around for. I promise.

Tuesday, May 30, 2017

Just Jump

Remember when you were a kid and you didn't care whether or not the pool was cold? And you just saw that sparkling water, revved up and jumped in without a second thought?

Yeah. Neither do I.

What I do remember is my mom, grandmother, aunt, dad...anyone, really, over the age of 20, telling me it was cold and not to rush them getting in the pool. Not to get them wet before they were ready. And I get it. Because cold water feels like Satan now that I am an adult.

There have been some videos and articles circulating lately, encouraging women to just stop caring and put on their bathing suits and have fun, for goodness sake. To stop worrying about what they look like and just BE.

And I think those are great. I have friends who struggle deeply with body image. Who hate bathing suit season. Who would threaten your life if you aimed a camera in their direction at the pool. (I am not naming names NOR am I saying this did or did not happen to me just yesterday.)

But I don't really know what that feels like during this phase of life, to be honest. I don't mind putting on a suit if it's high cut enough at the top. My main worry is a wardrobe malfunction that would leave people emotionally scarred. Not all bathing suits were created to parent spirited toddlers, for the love.

What I do struggle with is this: old lady grumpiness.

You know what I want? To sit on the side of the pool, dry, rather than freezing my patootie off in a frigid pool. To read a book for a whole hour straight with the sun beating down while I sip an iced coffee or chat with my friends. I want to RELAX.

I also want to be a good mom.

And it's clear that relaxation and toddlers are not possible at the same time, particularly around water hazards. Or, really, when they are awake.

So.

I woke up Monday morning and I knew we were heading back to the pool in a few hours. I knew my boys were going to want to spend 2 hours straight jumping in, climbing out and doing it all over again because it is exactly what they had done the two days before. I knew it was possible they would ask me to get in that water and not just be content with my pseudo-exercise role of bicep-curling them in a squat position out of the pool so they could jump back in to dad. They had asked me before and I had said no. I wasn't ready for that cold pool.

This time, though, I decided that, if asked, I would just jump.

I wouldn't stick my toe in first. I wouldn't creep, in infinitesimally painful increments, with a look of horror on my face, down the stairs.

I would just say yes. Just jump.

So, after about 20 minutes of bicep curling my two year old, my three year old looked me dead in the eye.

Jumping with Nate
"Mama, will you jump in with me?"
"Yes, bug, I will."
"Really??!!!! Let's do it together, Mama!"

Friends. I wish I could have captured that grin on film.  That toothy, thrilled, exhilarated, water-already-dripping-from-his-face grin. (My neighbor stealthily did manage to capture us jumping together without me knowing it, how cool is that?!)

Was that water cold? YEP.

Was it worth it? YEP.

That grin is going to carry me through every cloudy day when I want to stay on the side. Through every moment when I am carrying a grudge for how he has acted and don't WANT to go in the pool with him in retribution. That grin was pure magic.

I know I will fail to always follow through on this, but my summer goal is to "just jump". Just say yes when my boys ask me to do something that I might not WANT to do but that I know will be good for US.

To not, this summer, be a grumpy old lady.

Monday, April 24, 2017

The Longest Walk

I have a growing list of activities that it seems increasingly likely I may possibly accomplish.

  • Composing a concerto in my head.
  • Memorizing, in chronological order, every president of the United States.
  • Learning to rap "Ice, Ice Baby" backwards. 
  • Counting the number of times I have said the phrase "listening ears" since my children were born.
  • Identifying the current number of gray hairs I have.
  • Visualizing a map of Africa and successfully remembering the name of each country and where it is located.

These are just a few of many.

When (and why?) would I possibly accomplish these seemingly useless activities, you wonder, when I am parenting two toddlers at the same time?

The answer is easy: During the time it takes for my youngest child to walk up the stairs.

Let me paint you a little picture of how this goes each time.

(1) We approach the gate. Young one insists on opening the gate but is not developmentally capable of opening said gate. Conflict ensues. Mama opens the gate.

(2) Child takes one step up.

(3) Child takes one step down, opens gate, closes gate, insists on opening gate again. Cannot accomplish this aim. Conflict ensues. Mama opens the gate. Conversation about how we will only go UP from now on.

(4) Child takes one step up and spots a speck of dirt. Child picks up speck of dirt, hands it to mama and looks for more. This can last up to 3 minutes until stair is fully cleaned and mama is reminded of how dirty the step actually is.

(5) Child takes one more step up.

(6) Child gets distracted and asks mama to name every single person in every picture on the opposing wall.

(7) Mama complies because she is desperate for youngest child to be inspired to talk.

(8) Child takes one more step up.

(9) Child teeters on the brink of falling backwards down the stairs but screams in rage if mama attempts to keep him from plummeting to his death.

(10) Child recovers. Mama promises not to touch him.

(11) Child takes one more step up.

(12) Child takes another step up. (Mama tries to pretend she is not exceedingly delighted in this so that child might take another step up because HE WANTS TO.)

(13) Child proceeds to clean this step with same vigor as earlier step. Mama's pockets are now full of crumbs, dirt and leaves because, no, it is NEVER possible for her to vacuum the stairs. Ever.

(14) Child takes another step up and stops to take a break.

(15) Mama breathes in and out. Walking anywhere slowly is not her strong suit.

(16) Mama encourages resting child to make a big push to finish going up the stairs and begins to sing song she has composed to help little bottoms get moving when they are dawdling.

(17) Child responds gleefully to song and dances up the stairs, almost falling backwards again but scaring himself enough that he lets mama help this time.

(18) Mama keeps adding activities to her long list of what she might accomplish within the confines of her brain during stair-climbing episodes.

(19) Child reaches the top of the stairs and immediately turns around to go down the stairs.

(20) Mama attempts to explain that we are going to stay upstairs for at least 3 minutes so she can feel like there was an adequate reason for going up the stairs in the first place. Child isn't buying it. Conflict ensues. Reconciliation occurs. We stay upstairs and accomplish ONE THING and then come back down.

Five minutes later, start over.

Now let me make something clear.

I am happy my child can finally maneuver the stairs. This is another step on the long track that leads towards physical independence. Soon he will only fall up or down the stairs as often as I do. I look forward to that.

But for now? When every trip up the stairs goes so painstakingly slow that I am confident at some point we will forget whether we were going up or down?

I've got that list that keeps my mind busy.

'Cause mama can only stare at an adorable little backside for so long without losing her mind.

Tuesday, February 14, 2017

All You Need Is Love?

It's Valentine's Day.

And just like last year and the year before and well, pretty much every year that I can remember, I couldn't actually care less. That's not because I don't have an amazing husband and a lot of love in my life. It's just because I've come to believe that a lot of little, wonderful moments of doing life together goes a lot further for me than a fancy dinner and chocolates. Not that a fancy dinner and chocolates aren't welcome - but at this stage of life, we take dates when we can get them. And we've already got a fun one planned for Friday that has nothing to do with the holiday.

Valentine's Day is a day when we are meant to celebrate love by buying little trinkets and spiderman valentines and saying "I love you." (Which means that I, as a parent, spend time buying, filling out and making sure said little gifts get sent to the right places so my children can still participate in a holiday I don't care a whit about. I'm not yet so cruel as to force on them my own level of grumpiness about it.)

Like Christmas and Easter, we have learned to express love through gift-giving in our culture. And like with those holidays, sometimes the gifts are meaningful and other times they are just "stuff." Some people love the holiday and the exchanges and others would gladly skip it since it leaves them feeling empty or disappointed.

Some, like me, just don't care.

People like to toss around the phrase "all you need is love." I don't know if the phrase predates the famous song or if the song introduced the now-famous phrase. But I read it and hear it all the time.

It never sits well.

I've had a lot of love in my life. I grew up in a stable family. I married into a family that has made it clear they love me. I got married almost 14 years ago and love my husband more today than on the day we said "I do." I have three boys who express their love for me in countless ways. I have friends who speak truth and make me laugh.

Love is beautiful.

But, at least in earthly form, it's not everything.

In adoption circles, you hear about it a lot. "Those kids just need love and once they are in a "stable" family, they will be fine." Yes, they obviously need love just like every kid out there needs love. They are human. But they need a lot more. For my kids, they need me to be the kind of person who recognizes the importance of their culture, the reality of racism and the challenges of a multiracial family. Who takes research and listening and humility seriously and is willing to risk failure. They need me to care about their hair and learn how to do it correctly. They need me to speak well and often of their birthparents so that they feel the freedom to explore their own history when they are older. They need to be able to tell me they love their skin color and ask why mine is different without me panicking and shutting down the conversation. They need us to make choices so that they are in schools and churches and neighborhoods where they are not the only black children and so that there are authorities in their lives who look like them. They need us to recognize there is trauma in adoption - that even though we brought them home as infants, there is loss in their life, loss that love can seep into but not obliterate. That the identity questions with which they will struggle as black adopted children with white parents are no small thing.

I truly wish all we needed was "love". That I could fill up my heart with all the feelings and emotions and joys that are associated with it and be whole. But the way love is sold to us is so often lacking. It is shallow. It is impatient. It is all about what we get out of it and rarely about what we are meant to give in its name. God's love is the opposite. It is bigger and stronger and more sacrificial than anything we've ever seen. And it calls us to love in response. Not in small and frivolous ways, not just in words, but in action, in hope, in sacrifice.

So, yes, today my husband might come home with flowers because it is Valentine's Day. He will give me a kiss and ask how the day was and my little ones will giggle. He'll scoop them up and hold them close and kiss their curls and hug my oldest. He loves them and those actions are still powerful and good.

But I'm grateful that love is so much more than what we settle for so much of the time. That it is, in the immortal words of the old school DC Talk song, "a verb." It's action and sacrifice and challenge and choices, its sometimes choosing someone else's good over our own, all rolled into relationship and held together by God.

Let's celebrate that today. And tomorrow. And every day that we are fortunate enough to have people are in our lives. Let's do it in real and honest and challenging and beautiful ways.

Because if we could really see and live love in all its depth, poured out in service to those around us, the way it was taught to us by a sacrificial God who loves us more than we could ever ask or imagine, maybe the world really would be a better place.

Maybe that kind of love really would be all we need.

Monday, February 13, 2017

Fall Down Tree

Every Sunday morning our family unceremoniously and rather chaotically piles into our minivan to head to church. Snacks packed (because when you have kids with allergies and sensitivities, sunday school goldfish could derail your whole week), lunches packed (because, let's be honest, with three growing boys, it's a long time from breakfast through church and Sunday School and that fifteen minute ride home is much more peaceful with mouths chomping) and a sense of having accomplished the impossible, getting all five of us out the door by 8 am, permeates the atmosphere.

No matter how we enter that car, I know now that something is about to change for our family. We are about to encounter "Fall Down Tree."

Just after we started coming to this church, we came across it. A huge tree, roots upended, laying right by the side of the road in someone's front yard. Somehow, this tree has become the focal point of our ride. It is cause for speculation, pontification and flat-out aesthetic awe.

How did it fall? Why don't the people who live there clean it up? How old might it be? Can we knock on their door and ask to play with it?

All these questions and more are answered in serious and silly fashion. (Maybe Joshie bonked it with his bike! Maybe Nate pushed it over with his strong arms! Maybe God blew on it and, poof, it fell over!)

But however it has happened, the conversation always ends with a chant. My youngest laughing and pumping his arms in the air as the middle and oldest chant "Fall down tree! Fall down tree! Fall down tree!" Dissolving in giggles at the end, we often enter church with lighter hearts and goofier outlooks.

Friends, this is a powerful thing.

You see, Sunday mornings have traditionally been calamitous. Screaming, crying, multiple changes of clothes, arguments. Usually this has culminated in two very exhausted parents who spend the greater part of the church service trying to remember why we even attempted to come to church in the first place. Too exhausted and defeated to even attempt to open our souls to what God may have for us that morning. Just grateful on some level that childcare is provided, we  would fight to stay awake during the sermon and then trudge back home again.

But now we have "Fall Down Tree." This strange and unexpected beacon of distraction and hope. No matter what mood everyone is in when we enter that car, as we turn that bend and "Fall Down Tree" comes into view, there is a shift in that minivan.

And entering church in its aftermath is a whole different world. Laughter has helped us shake off any early morning tomfoolery. Chanting has helped us loosen up our rigid need (ok, MY rigid need) to be early for church and the ensuing stress when someone has caused us to be late. Again. The camaraderie of three boys rejoicing together, united in spirit for even 5 minutes, gives everyone the chance to take a deep breath. To enter church with thanksgiving. To walk in with a posture that invites rest and redemption and joy.

Some day I am certain that that family will clean up the tree. We will turn the bend and as the chanting begins to rev up, the car will fall silent. There will be disappointment and mourning and the end to what is, at least for now, a tradition. Possibly we will pull some deep lesson out of its disappearance.

For now, though, I am relying on "Fall Down Tree." Because right now it is a tangible, beautiful reminder that any day can be reset. Any hard moment can suddenly turn into one of laughter and joy and lasting family memories. That giggles and silliness can be powerful preparation for inviting God to do His work of healing in our souls.

I know that one day, a long time from now when this tree is a distant memory, we will look back and tell the boys about it, about this tree that brought hope and life back into Sundays for our family.

Maybe God did blow it over for us, after all.

Monday, January 30, 2017

Texting the Ridiculous

We all have them. Or we should.

Those friends to whom we can text something totally ridiculous out of the blue, right in the middle of our most chaotic moments, and know we are heard and understood.

For me, I know those friends are likely laughing at me or with me. They are writing something equally ridiculous right back. They are sending dumb pictures of stupid injuries or of a child drinking from a puddle in the street or of another failed meal prep. They are texting while they reheat their cup of coffee for the seventh time. Sometimes they are texting about how they just cried, too. Or about how they miss working outside the home. Or how, just for one minute, they'd love to pee without someone watching.

In it together.

Ideally, these friends would be right in the room and we could do this face-to-face. But that's not reality. Some of them live right around the corner, others across the country. Some I've known for decades and others for months.

But they are there. Here. In it.

I am not a techie person. But, in a way, during this season of being home, a choice I never thought I'd make and one with which I struggle daily, these texts have saved my life.

In the moments when I feel the most alone, the most likely to lose heart, I can say a prayer, press a few buttons and have a friend saying "God has got this, take a deep breath, laugh at yourself, order a pizza, tomorrow's a new day." I can take heart knowing that I am just one of so many mamas in the trenches.

And I cannot express how grateful I am.

Grateful that these are people in my life who get it. Grateful that they don't reply with cliches or tell me I'm complaining. (Unless they really SHOULD tell me I'm complaining and to suck it up for goodness sake. Because I need that sometimes, too.) Grateful for honest, simple interactions that ground me during a phase where my children's needs keep me isolated a lot of the day, especially during the winter with my cold-hating babies.

I know one day we probably won't text as often. And the texts won't include pictures of my infant attempting to drink from the toilet. Maybe we'll live closer and talk over a glass of wine while our kids are old enough to play without needing minute-to-minute intervention.

I don't know.

For now, I'm glad for the few, the crazy, the text-buddies. You know who you are. Love you.

Monday, December 5, 2016

Angels

Just a few weeks ago, my middle child pulled out a book that had been in storage since last Christmas. Last year, he wasn't quite ready for it. It had a lot of words that required the art of sitting still for more than roughly 4 seconds at a time. Not his jive just yet.

This year he can, just occasionally, enjoy a good book. And as we read through it for the first time, his eyes got big. He pointed and asked questions. And every day he asks to read it again.

The book?

An Angel Just Like Me by Mary Hoffman

It's the story of a young black boy during Advent who wonders why all the angels he sees are blonde girls. Who wonders if it's possible that an angel could look any differently. Who goes looking in store after store to find an angel just like him.

Ultimately, he can't find one. And a family friend, an artist, comes to the rescue and makes him one. He opens it Christmas Day in wonder...and then asks if his artist friend can make more for all his other friends that wonder if there are angels just like them.

It's a beautiful story. My son's very favorite.

And when we get to the end, my son always points to the black boy angel and says "Just like Nate?"

Yes, buddy. He looks just like you.

Maybe the concept of angels not all being white is new to you. Maybe the concept that people in heaven will not be some weird pale ghostly representation of humans is surprising. But God makes it clear in the scriptures that he has made us all in his image. And that when we share that heavenly feast some day we will not actually look all that different from how we do now. Because how we look now is beautiful and purposeful and good.

My son has noticed his skin is brown from before he could really articulate it. He would point to black characters in books and then to his own skin. He would run to black men on the playground and yell "Daddy!" (Yes, that was painful for most involved.) He thinks he is handsome with his dark skin and black curls and brown eyes. And he's right. He's pretty dang handsome.

But a lot of what he sees around him, in stores, on billboards, in the toys at school or the nursery? A lot of those things are white. White people playing. White people speaking. White characters in books.

And because he has white parents and a brother, he sees a lot of white at home, too.

And friends, it's ok. White isn't bad. God made me this way. And my husband. And my firstborn.

But if white is all he ever sees, he can unconsciously believe it's better. That it's more desirable. That it's somehow more important.

And that is the last thing we want him to believe about us or himself.

So when we read a book like that? And he relates to the character?

Well, Mama starts combing the stores. Where can I find an angel just like him? And one that he can touch and hold (read, not breakable) and doesn't cost more than I can afford?

Well, almost nowhere, to be honest.

I had just put on my list for this week to get to a craft store, buy an angel and paint it black. Because I wanted him to have that angel he so desperately wanted. And when you can't find what you need, you make it, right?

This morning, I posted a picture on my facebook page of a Santa canvas that I had painted for him a year ago. Well, really, I painted it for all my boys. I don't want my white son to grow up in a white-washed world any more than I want that for my black sons or for me. Culture and differences are rich. I want us to bask in them around here.

I posted that Santa picture and shared a story about how much it meant to him to have a black santa in our house.

And just a few hours later, I was out walking my youngest. A neighbor of ours, one I am just getting to know, ran out of her house with a gift for us. She smiled, walked up to me and handed me a black angel. A black boy angel. That happened to look a LOT like my boys.




I was almost speechless. I assumed she had seen my post this morning and was so grateful.

But no. She had seen me coming down the street. She had owned this angel for years and she just knew, in that moment, that it was for my sons.

Ya'll.

I picked up my son from preschool, brought him home and handed him that angel.

Pure. Joy.

"It's me?? It's me!!! I'm an angel!"

Yes, baby. You are.

Wednesday, November 16, 2016

Reclaiming the Mommy Wars

At some point last year, I was in a very low place about my parenting. Exhausted, short-tempered and largely without joy.

OK, if I'm honest, I feel that way more than I should.

But on that particular day, I recognized what was happening. I was buying into the facebook picture of parenthood. The happy, smiling children dressed in immaculate outfits that, while they look expensive, were somehow bought on clearance at a fair-trade, environmentally responsible store. The ones with kids eating out and not losing their minds in restaurants and pictures of 10 hour road trips with patient kids who would prefer to live in their carseats than anywhere else. The parents who were well-groomed and confident of every single parenting choice they have ever made.

You know the feeling. Your life is full of mess and noise and chaos and children who believe that carseats are the actual lap of Satan and everyone else is frolicking in a field of unicorns.

And the comparison causes you to lose heart. To feel like each choice you make is wrong. That you are no good at this.

I SO OFTEN feel that I am no good at this, friends.

And add in the mommy wars? Perpetually being told that there is a better way, a healthier way, a Godlier way...a WHATEVER way, that you aren't doing?

And we can drown. We can just drown in unmet expectations, in fears, in being unable to see our own strengths and recover from our own failures.

So on that day, I chose to do something else than just drink coffee, put in my earplugs and wish my kids would use their words. I was a part of an online moms group. Mostly, we shared about life online with each other. Occasionally we would meet up and do something if it could work out all the crazy alignments of naps and moods. But on that day, I just asked a few simple questions.

What do you excel at as a parent? What's hard for you or an area you need growth?

And then watched as people commented. As we rejoiced in what other people were good at. As we felt better about the areas in which we struggle when we heard that maybe other people do, too. We cheered for each other. We laughed. We were together in this thing.

Do we agree about everything in the larger sphere? Nope. I'm sure there are vast differences on what we think about vaccines or breastfeeding or school choice or religion or even who we just voted for in this election.

But, friends, we don't have to let our differences destroy us as parents. I can rejoice that a friend of mine loves the baby stage and thrives on her children needing her while I usually just feel exhausted and overwhelmed by touch and noise when they are little. And she can rejoice that I can put on a pretty awesome dance party for my kids once they learn to walk even if she is embarrassed to even attempt the electric slide.

It doesn't have to be a competition. It can be a chance to rejoice.

So, today, I don't know how you're feeling.

I don't know if you are discouraged or comparing yourself or feeling DONE with this parenting thing. I have been there, oh, how I have been there more times than I would like to remember. Maybe you are flying high on a parenting win. That's awesome. I love it.

No matter where you are, let's take a moment to share.

What do you excel at? And what's hard?

And then let's sit back in wonder and joy as we see the vast gifts and passions of those who surround us shared in a way that can, actually, only make us better at this crazy thing we call parenting.

Wednesday, November 9, 2016

Tears in the Dark

It is 6 am in the morning.

You were up at 4:30 again because of the time change. I tried to rock you back to sleep but you were having none of it. I put you back in the crib and couldn't help checking the election results. I was way too tired yesterday to make it past 10 pm and went to bed nervous but hopeful.

I pulled up the screen and my heart flew into my throat. It happened. It actually happened.

And as I lay in the dark, now wide awake, listening to you protest your return to the crib, I tried to wrap my mind around the world you are growing up in.

But I can't.

So I padded quietly back down the hall and picked you up. We sat in the rocking chair, wrapped in a blanket together. I kissed your sweet, dark curls and let silent tears fall on them.

I am so sorry, little boy. So sorry.

So sorry that America isn't a safe place for you.

So sorry that sooner rather than later you are going to experience hate.

So sorry that you, my beautiful boy, are not going to be seen for who you are but for the threat you could possibly be.

So sorry that I can't protect you.

Even as you finally fell back to sleep and now lay peacefully ignorant of the way the world has gone mad, I can't stop crying. I don't know how to tell your brother when he wakes up. I don't know what he will hear today as he goes to school. I don't know how his friends of color will be treated today in the aftermath.

I know I should be saying something like "my hope is in the Lord" and my kingdom is not of this earth. Those are true statements.

But at least for today, I am going to mourn. I am going to lament with my friends who feel less safe today. I am going to choose to be kind and patient and not act in fear because I will not go low.  I am not interested in debating or arguing today.

I am going to continue to teach my children to love today. And do my best to do the same.

And starting tomorrow, I am going to pick myself back up and work my hardest to make sure that by the time my black sons are old enough to understand, things will have changed.

Tuesday, November 1, 2016

A Letter to My Firstborn on His 10th Birthday

To My Son,

Ten years ago on this day, I remember two things.

One, being absolutely starved and just wishing you'd be born already so I could finally eat again.

November 1, 2006
Two, being completely overwhelmed when you were placed in my arms. No words, no thoughts...just staring and wondering how it was possible that this tiny human was finally here.

And now, today, at 9:44 am, you turned 10.

What a ride it has been.

You were born in Virginia, came out of your shell in North Carolina and came into your own in Wisconsin. Now we are full circle and it's been, at least from your perspective, the hardest year of your life. You left all that was familiar to you, crossed the country with two very angry, very loud, toddlers. You searched unsuccessfully for friends during the longest summer of all our lives. You have struggled through your first bad teacher for a few months now.

But all that is beside the point.

I don't tend to wax too sentimental over the baby years. I have loved watching you grow and learn and become this phenomenal human. But there is something about this milestone that has got me thinking, pausing.

You, my son...well, where do I start?

You have the best giggle of any kid I have ever met. Your smile lights up a room. Your beautiful eyes are full of curiosity, full of kindness and hope. Your heart aches with those you love when they feel pain and rejoices with anyone who is happy. You play soccer fiercely and even though you aren't the biggest or the fastest kid on the team, you practice hard and you give your all. You read books about science before bed and want to grow up to solve global warming. You write books in your spare time and draw schematics for your Lego city. You consider it your responsibility and joy to keep your little brothers laughing and you make up better games for them than I ever could.

You are jocky and nerdy and funny and kind and sweet all at the same time.

The time is coming, though, when it won't be so easy to be kind. When choosing that road might render you uncool. When erring on the right side may mean you lose friends. When defending the humanity of your brothers gets you called names. When working hard at your schoolwork and wearing glasses might put you in the dork category.

When being unashamedly you will no longer be as easy as it has always been.

Son, don't let them change you.

Laugh when you think something is funny. Dance if your favorite song comes on. Play with any kid you want, whether or not the "right" label precedes his or her name. Continue to see girls as playmates, as humans with brains and brawn and creativity. As friends, not objects. Care deeply about justice and love.

Even when no one else does.

You won't look back in your twenties and wish you had tried harder to be like everyone else. You might, however, look back and wish you had the guts to be yourself, no matter the cost.

So, my beautiful boy, happiest of birthdays.
Ten years old!

I am not choosing the sentimental route, the route of wishing you were still little and I could hold you close. The truth is, I count it a joy and privilege to watch you grow each day. What I love and long for is to see you experience joy, right here, right now. To give me hugs if you want but to let go of you when I need to because it's best for you.

You have made me prouder than I ever thought possible.

Keep being you.

Fierce, loyal, funny, smart and kind.

And never apologize for it.

Love,
Your Mom

Good Enough

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